This year marks the 10th anniversary of the Advances in IBD Conference. We look forward to seeing all the familiar faces soon and meeting many newcomers as well.
CCFA’s mission is to find a cure for IBD. However, as many of you already know, the Foundation also invests heavily in improving the quality of life for patients.
The goal of CCFA’s patient support programs is to build the knowledge base of patients beyond what they are able to glean from doctor’s office visits, which are often focused on their most immediate needs or emergencies.
The Foundation keeps current on topics that are important to patients through our partnerships with physician members and through call-ins to our Information Resource Center (IRC) helpline. We receive an average of 1,000 calls per month at the IRC, more than half of which come from patients who are new to IBD and CCFA. This has resulted in the publication of several new brochures such as “Diagnosing and Managing IBD,” “Surgery for Crohn’s Disease and Ulcerative Colitis,” and “Facts about IBD.”
The newest expansion to our online presence is the “I’ll Be Determined” website which takes visitors through four separate decision journeys: “treatment,” “diet, “ “complications,” and “living with IBD.” Patients can easily access a wide range of educational content displayed in an interactive format through engaging questions and video-based tutorials. Be sure to visit the site at www.ibdetermined.org and encourage your patients to do so as well.
CCFA’s national fundraising events—the Team Challenge half marathon training program and the Take Steps community walks—are energizing many communities to get behind the goal to cure and prevent IBD. We’d love to have you join us.
As always, we hope that you will register for the 2011 Conference and share the value of this meeting with colleagues.
With best regards,
Richard J. Geswell, President